Ovarian Cancer Australia Privacy Policy

Ovarian Cancer Australia Limited (OCA) respects and is committed to protecting your privacy. OCA is required to comply with the  Privacy Act 1988 (Cth), including the Australian Privacy Principles contained in the Act, as well as applicable State and Territory based health records legislation.

This policy sets out how OCA collects, holds, uses, discloses and keeps your information secure and correct, how to request access to and collection of the personal information we hold about you and how to complain.

What is personal information?

Personal information is any information or opinion about an identified individual or an individual who is reasonably identifiable, whether the information or opinion is true or not.

Sensitive information is a subset of personal information which includes information about your health, your membership of professional association, religious affiliations or beliefs, criminal record and racial or ethnic origin.

Because of the nature of our organisation and the support services that we provide, the personal information we collect may include your health or other sensitive information.

What personal information do we collect?

The personal information we collect about you depends on your relationship with us and the nature of any support services that we are providing to you.

Donors and supporters
We may collect the following personal information about you if you are a donor or supporter:

  • your name and contact details (including email, telephone/mobile number and address);
  • payment information such as payment method (e.g cheque, cash, credit card) Transactions made through Eway save credit card type, first and last 4 digits of the credit card number and expiry date.
  • amount of your donation(s);
  • date of donation(s) and any campaign they relate to; and
  • details of any previous donations.

We may collect your personal information from you directly, or from third parties such as GoodCompany, Everyday Hero and GoFundraise, if you register with them to raise money for OCA.

Job applicants and volunteers
Depending on whether you are a volunteer or a job applicant, we may collect the following personal information about you:

  • your name, contact details and emergency contacts;
  • your qualifications and skills, past employment history, memberships of professional associations and details of referees;
  • details of your previous volunteer work with us;
  • OCA does not require police checks or working with children checks from job applicants or volunteers, except any candidate who may be appointed to the position of CEO.

Those we support

Depending on the nature of the support we are providing to you, we may collect the following personal information about you:

  • your name and contact details;
  • details of your condition, including the type and stage of cancer, when you were diagnosed, where and how you are being treated and your family history.


Depending on the nature of our interactions with you, we may collect the following personal information about you:

  • name and contact details;
  • details of the nature of your relationship with OCA;
  • details of your enquiry or complaint.

Dealing with us anonymously or using a pseudonym 

You may deal with us anonymously or use a pseudonym, wherever it is lawful and practical to do so. Donors can chose to make donations anonymously, however if paying by credit card we will need to collect some personal information in order to be able to process your donation.

Website and cookies policy 
The OCA website uses cookies to improve our website. However the information that we collect via cookies is not personal information and we are not able to identify you from it.

How do we use and disclose your personal information?

How we use and disclose your personal information also depends on your relationship with us and the nature of any support services that we are providing to you.

Donors and supporters
We use your personal information for the purposes of processing your donation, financial reporting, and contacting you about our activities and events if you have asked us to.

If you have chosen to make a public donation, then we may disclose your name and the amount of the donation on our website for as long as the fundraising campaign continues (variable by campaign). If you do not wish to have your information displayed, you can opt to make an anonymous donation.

Job applicants and volunteers
We use your personal information to process your job or volunteer application, and if you are a volunteer, for management and HR purposes.

Those we support
We use your personal information to provide you with our services as a person suffering from cancer and ensure the consistent provision of support services. We do not disclose your personal information to any third parties. Patient information is never distributed.

Depending on the nature of your relationship with us, we may use your personal information to respond to your enquiry or complaint, provide you with our publications, send you surveys or contact you with information regarding our activities and events or services.

We may also disclose your personal information where required or authorised by or under an Australian law, or court or tribunal order.

Direct marketing
If you have asked to receive information from us about our activities and events, we may contact you by via post, phone and/or email. You can opt-out of receiving such communications from us at any time by contacting us on 1300 660 334 / admin@ovariancancer.net.au or by going to the ‘Contact Us’ section of the OCA website.

How do we keep your personal information secure?

We understand the importance of the personal information that we hold and we take reasonable steps to protect that personal information from misuse, interference and loss, and from unauthorised access, modification or disclosure. Your personal information may be stored in hard copy documents held in locked filing cabinets on our premises, or in electronic format on cloud based database and backed up overseas.  Access is restricted to those within our organisation who require it in order to carry out their role with OCA.

Health records
If the information that we hold about you forms part of a health or medical record, that information will be held for a period of at least seven (7) years from the last time we provided you with a health service, in accordance with the Victorian Health Records Act 2001 or other applicable laws. If the health record is that of someone under the age of 18, that information will be held at least until that person turns 25.

How can you access your personal information?

You have a right to access the personal information OCA holds about you subject to certain exceptions. If you would like to request access, please contact us on the details below.

We will need to verify your identity before we can provide you with access. Access will be granted, except in circumstances set out in the Privacy Act and other applicable laws, such as if providing you with access would unreasonably impact on the privacy of others or if we are required or authorised by law to deny access. If we refuse your request, we will give you written notice of our decision, including our reasons and how to complain if you are not satisfied with our decision.

Quality and correction of personal information

OCA takes reasonable steps to ensure that the personal information it collects about you is accurate, up-to-date and complete, and also when using and disclosing it, that it is relevant for the purposes of the use or disclosure. If we are satisfied that any of the information should be corrected we will also take reasonable steps to correct that information.

If you believe that the personal information that OCA holds about you is inaccurate, incomplete, out-of-date, irrelevant or misleading, please let us know by contacting us on the details below.  If we do not agree that your information needs correcting, we will give you written notice of our decision, including our reasons and how to complain if you are not satisfied with our decision. You can also ask us to associate a statement with the personal information which explains that you believe it is incorrect.

You will not be charged for making a correction request or requesting us to associate a statement with your information.

Privacy queries and complaints

If you have any questions about your privacy, or if you believe that OCA has not handled your personal information in accordance with this Privacy Policy or with applicable privacy laws, please contact our Privacy Officer on the details below and provide us with written details of your complaint.

The Privacy Officer
Ovarian Cancer Australia
Level 1, 210 Lonsdale Street
Melbourne VIC 3000
Phone:   (03) 9289 9777
Fax:     (03) 9671 4181
Email: admin@ovariancancer.net.au

We will investigate and respond to your complaint within a reasonable period, generally within 30 days. We may need to request more information from you and we may propose a resolution to your complaint.

If you are not satisfied with our response, you can contact the Office of the Australian Information Commissioner or the regulator of health records legislation in your jurisdiction. In Victoria this is the Health Services Commissioner.

Office of the Australian Information Commissioner
Phone: 1300 363 992
Post: GPO Box 5218, Sydney NSW 2001
Online form: www.oaic.gov.au (Privacy Complaint Form).

Office of the Health Services Commissioner (Victoria)
Phone: 1300 582 113
Post: Level 26, 570 Bourke Street, Melbourne VIC 3000
E-mail: hsc@dhhs.vic.gov.au

Changes to our Privacy Policy

OCA may, from time to time, update or change this Privacy Policy to ensure that it reflects the acts and practices of our organisation as well as any changes in the law. Any changes will take effect from the time that they are posted on our website at https://ovariancancer.net.au/.

Last reviewed: October 2017