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Say Hi Here!

Introduce yourself and tell us a bit about your story...

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By Profile photo of Jesussalvation2016 Jesussalvation2016 2 weeks, 2 days ago

Anything Ovarian Cancer

Not sure where to post? Your thoughts, updates on treatment and questions welcome here!

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By Profile photo of jules jules 1 month, 1 week ago

Ovarian Cancer Australia’s Support Services

Browse here for updates and the latest news on the support services offered by Ovarian Cancer Australia.

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By Profile photo of admin admin 3 days, 8 hours ago

Online Forum Tips and Tricks

Get the most out of your online community! Read and Share How To tips and FAQs here.

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By Profile photo of admin admin 5 months ago

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Free scarves

Hi everyone I have just found out that women can access free scarves and turbans at The New Peter Mac they have had this service available for 10 years. They borrow wigs and give away scarves and other headwear as well. I did not know that this service was available so I hope that it was useful to women who have been newly diagnosed. I ended up getting some Bandanas and scarves from my sisters. The silk ones are very slippery and just drive you crazy. I went to the look good feel great workshop- which was good because although I dont wear make-up they gave some good tips about head wear. Wishing you all a speedy recovery. Best wishes Robyn

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By Profile photo of Helen Helen 4 months, 4 weeks ago

Surgery… helpful advice?

Hello ladies. I am wondering if anyone has any particular words of advice for before or after surgery care/preparation? I am booked in next weekend for debulking surgery as my cancer has spread extensively to the bowel, omentum, stomach lining and some spots on the liver. The surgeons are estimating 5-8 hours of surgery time. I have been advised of the possibility of a stoma after the surgery, (possibly for a 6 month period) and large incision from sternum down. I have also been advised that there will probably be an epidural for pain relief afterwards and looking at a 5-6 day stay in hospital and at a further 3 weeks off work? Just interested in hearing if anyone has any advice that they wished they had been told prior to their surgery? Thank you ladies, cheers Nicole x

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By Profile photo of jules jules 4 months, 4 weeks ago

Genetics and Ovarian Cancer

A group to discuss genetics, family history and genetic testing

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By Profile photo of rachelt rachelt 3 months ago

Do you have a Resilience Kit?

We know that the time immediately following an ovarian cancer diagnosis can be a difficult one and it can be hard to find reliable, easy to understand information. Ovarian Cancer Australia produces the Resilience Kit, a book which includes information on all aspects of ovarian cancer, a diary to help keep track of treatments and appointments and insights from other women who have been through a similar experience. This resource is available for free to every woman in Australia with an ovarian cancer diagnosis. To order the Resilience Kit please click here. For those who have a copy already: how do you use your kit? What did you find most useful? Please feel free to share your thoughts and tips below.

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By Profile photo of rachelt rachelt 5 months, 3 weeks ago

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Round 5

It's back again... I thought I managed to get away with just surgery last September but it looks like I have a scattering of tiny spots around my abdomen they can't operate on.  Unfortunately I have to have cisplatin (I don't know how to spell these things) which I don't like and caelyx which I haven't had before.  If anyone has had caelyx let me know what it's like!  From what I've read it sounds like it should work so I'm actually excited about starting chemo again. Nikki

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Back again mets in Brain

Hi. My mum is 69 years old and was diagnosed with stage IV Ovarian Ca in 2014. Since then it has reoccurred twice and back again now but she now has mets in brain. She recently underwent brain surgery which seems to have been a succes. She is now having new symptoms with her ovarian cancer and we were told that people In her condition usually only have 6 months or less or maybe a bit more to live. We are getting frustrated as she has been told different thinga by different people. The decision my mum has to make at the moment is weather she does chemo again first or does she commence radiotherapy (whole brain or focus) and wait to chemo. Has anyone has the Ca spread to other areas of the body and survived even if Drs have given a rough time frame?        

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By Profile photo of admin admin 2 months ago

here we go again

Hi, I am new to this site. After a 4 1/2 year remission from stage IIIa serous cancer,my CA125  went up only a little bit to 46, CT scan was clear but a PET scan showed a 4cm tumor in the presacral region plus some small ones on the lungs. After being given totally conflicting advice from the oncology team from: "Your tumor count is so low tou don't need chemo" "It's in your spine,why do you have an appointment with your cancer gynecologist? " "You'll need chemo definitely " Saw the cancer gynecologist who said it's not in the spine but on the bowel and first surgery,  followed by radiation therapy and than chemo. Anyone been through this and can tell me what to expect from bowel surgery? I've been told the surgery will be hard and hospital stay longer than last time. I would love to hear from you who have been in this place Looking forward to hearing from you Cori

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By Profile photo of jules jules 2 months, 1 week ago

Good News!…Finally

I finally saw my doctor and I don't have to have any follow up treatment at this stage!!!  All I have to do is have another genetic test done and depending on the results, maybe some further genetic therapy. It is such a relief to finally have some good news and be able to get on with life without having to organise everything around regular treatment. Nikki

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By Profile photo of karen karen 4 months, 3 weeks ago

Treatment…Again

Hi everyone! My wound is healing, I'm back at work and I have another lovely scar to add to the road map that is my belly.  I am now up to 70 cm worth of scars.  Anyone out there with more? Anyway, because my Cancer has to be different and make my doctors work extra hard, it is platinum resistant.  At this stage I'm waiting to hear what they are going to do with me.  One suggestion has been hormone therapy.  This is one treatment I haven't had.  I've done radiation and 2 different types of chemo so I know all about that, but the hormone stuff is a mystery. If anyone has had hormone treatment please share your experience so I have some idea about what I'm in for. Nikki

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Is It Just Me? The Younger Women’s Resource

Ovarian Cancer Australia are proud to be able to offer a web based resource written specifically for younger women with an ovarian cancer diagnosis. You can find links, stories and information specifically for you here. This group is a space to share some of the specific issues you might have experienced having had an ovarian cancer diagnosis at a young age.  

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By Profile photo of jules jules 1 month, 1 week ago

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Providing Support

Friends and family of a woman with an ovarian cancer often ask how they can best support their loved one at this time. You can find some helpful information here in our Family and Friends Brochure.   How have you provided support? What has helped and what has hindered? Please feel free to share below.

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support through treatment

Hi everyone, I'm very new to this community but hoping that there might be some tips and advice out there that I can tap into. My partner is nearing the end of her treatment journey and will next week start her final course (so we've been told my the oncologist) of radiation. She's had several round already and has struggled with keeping mentally occupied while she's recovering. She'll be at home for the length of treatment (except for actual treatment). So I'm wondering if anyone has any tips or things they've found helpful in keeping mentally happy during treatment. I'm thinking of getting things like puzzles, a voucher for a photo book she can put together etc but am hoping others may have other suggestions. much appreciated

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By Profile photo of Helen Helen 5 months, 2 weeks ago

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The Dreaded Stoma!!!

It is an unexpected surprise even when forewarned.  Not many people like to talk about it and it some ways it is more confronting and harder to cope with than the initial diagnosis of cancer.  Having a stoma changes your perception of yourself and your confidence takes a big hit.  I have had both a colostomy and iliostomy and they are very different to manage. How have people coped with managing their stoma both physically and emotionally? How did people go getting their body back to 'normal' after reversal surgery? Nikki

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Staying Well

Exercise and nutrition can form an important part of feeling good throughout treatment and beyond. Our fact sheet Staying Well might help you to start thinking about eating well and staying active. This is just a starting point! What have you found works for you? We would love you to share your thoughts and tips here.  

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By Profile photo of Sara Sara 2 months, 1 week ago