Recurrence

For many women the possibility of recurrence can cause a high level  of anxiety. If this occurs, the question of "What now?" can feel overwhelming. This group will provide information and support for women specifically at this time.


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Round 5

By Nicole | March 1, 2017

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Back again mets in Brain

By Melanie | January 24, 2017

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1 month, 1 week ago

here we go again

By corina | October 29, 2016

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Good News!…Finally

By Nicole | October 28, 2016

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Treatment…Again

By Nicole | September 26, 2016

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Curious

By | September 8, 2016

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It’s Back!!!!

By Nicole | September 7, 2016

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Clinical Trials

By Admin | August 7, 2016

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    • Freshness
    • Round 5
      It's back again... I thought I managed to get away with just surgery last September but it looks like I have a scattering of tiny spots around my abdomen they can't operate on.  Unfortunately I have to have cisplatin (I don't know how to spell these things) which I don't like and caelyx which I haven't had before.  If anyone has had caelyx let me know what it's like!  From what I've read it sounds like it should work so I'm actually excited about starting chemo again. Nikki
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    • Back again mets in Brain
      Hi. My mum is 69 years old and was diagnosed with stage IV Ovarian Ca in 2014. Since then it has reoccurred twice and back again now but she now has mets in brain. She recently underwent brain surgery which seems to have been a succes. She is now having new symptoms with her ovarian cancer and we were told that people In her condition usually only have 6 months or less or maybe a bit more to live. We are getting frustrated as she has been told different thinga by different people. The decision my mum has to make at the moment is weather she does chemo again first or does she commence radiotherapy (whole brain or focus) and wait to chemo. Has anyone has the Ca spread to other areas of the body and survived even if Drs have given a rough time frame?        
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    • 1 month, 1 week ago

      Profile photo of admin admin

    • here we go again
      Hi, I am new to this site. After a 4 1/2 year remission from stage IIIa serous cancer,my CA125  went up only a little bit to 46, CT scan was clear but a PET scan showed a 4cm tumor in the presacral region plus some small ones on the lungs. After being given totally conflicting advice from the oncology team from: "Your tumor count is so low tou don't need chemo" "It's in your spine,why do you have an appointment with your cancer gynecologist? " "You'll need chemo definitely " Saw the cancer gynecologist who said it's not in the spine but on the bowel and first surgery,  followed by radiation therapy and than chemo. Anyone been through this and can tell me what to expect from bowel surgery? I've been told the surgery will be hard and hospital stay longer than last time. I would love to hear from you who have been in this place Looking forward to hearing from you Cori
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    • 4 months, 2 weeks ago

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    • Good News!…Finally
      I finally saw my doctor and I don't have to have any follow up treatment at this stage!!!  All I have to do is have another genetic test done and depending on the results, maybe some further genetic therapy. It is such a relief to finally have some good news and be able to get on with life without having to organise everything around regular treatment. Nikki
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    • 6 months, 4 weeks ago

      Profile photo of karen karen

    • Treatment…Again
      Hi everyone! My wound is healing, I'm back at work and I have another lovely scar to add to the road map that is my belly.  I am now up to 70 cm worth of scars.  Anyone out there with more? Anyway, because my Cancer has to be different and make my doctors work extra hard, it is platinum resistant.  At this stage I'm waiting to hear what they are going to do with me.  One suggestion has been hormone therapy.  This is one treatment I haven't had.  I've done radiation and 2 different types of chemo so I know all about that, but the hormone stuff is a mystery. If anyone has had hormone treatment please share your experience so I have some idea about what I'm in for. Nikki
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    • Curious
      Hi Everyone,  How did you know that your cancer had returned?  Did you show similar signs and symptoms again?  Did you pick up on these quicker the second time around?  Or was it picked up with monitoring by your specialists, such as a rise in your CA125 levels etc?
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    • 4 months, 2 weeks ago

      Profile photo of Sara Sara

    • It’s Back!!!!
      Hi Everyone, Nikki here.  It's been 6 days since surgery for recurrence number 3 and yet another visit to the lovely people at John Hunter.  For me this is a minor recurrence and my doctors don't seem in a flap about it.  Don't know yet if I'll be having any follow up treatment.  So far I've had 2 rounds of carbo and taxol, one round of gemcite and cycplatin (pardon my poor medical spelling) and a go at radiation. For all those who have had another unwanted visitor, please share your experiences.  Any new treatments or side effects?  How did you feel when you got the news?  Any symptoms?
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    • 8 months, 2 weeks ago

      Profile photo of nikki nikki

    • Clinical Trials
      Many women who experience a recurrence of ovarian cancer have questions about the best treatment for them, including questions about new treatments which are being developed and clinical trials they may be eligible for. To read Ovarian Cancer Australia’s clear, reliable information on Clinical Trails, please click here. Have you been involved in a Clinical Trial? If so what was your experience? How did you find information on the trial? Please share your story below….  
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    • 8 months, 1 week ago

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