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Olaparib

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Helen

242 POSTS
JOINED AUG 2016
September 19, 2016 at 6:30 pm

I am on a clinical trial, that is based in Sydney.  This is my second clinical trial.  In the first trial I received the placebo and I was taken off this trial when it was clear that my cancer had returned.  After some surgery I was given the opportunity to go on another trial of the same drug, however I wouldn’t receive the placebo this time.  I have been on this trial for 9 months now.  For the first 5 months I was given Olaparib and a chemo drug called cyclophosphamide.  I am now only being given Olaparib.  For the first 6 weeks I had to have blood test each week, this was to check that my red blood cells were not too low and a scan every 3 weeks.  As we live in Canberra, it was a bit tedious going up each Wednesday for this blood test and doctors appointment.  Sometimes we went the night before to sort of make it a mini holiday.  Then the appointments dropped down to 3 weeks apart, then 6 weeks apart and now they are 3 months apart.   There are so many positive things about a trial, you are being monitored regularly, you are treated so respectively and wonderfully by the trial staff, you are participating in research to help future patients, you are usually seen by the top specialist in the country, you are being offered a treatment that will prolong your life, it gives you hope for the future and if you are a country resident you can get assistance to help cover the costs of getting to Sydney.  One of the disadvantages of a trial, is that once again you are getting a drug that has side effects.  With Olaparib there was a bit of nausea at first, however that has now settled down and the doctor was fully aware of this side effect and gave you anti nausea tablets and the other side effect is a bit of tiredness, which seems to have gone now.  I heard about the trial through my oncologist.  She recommended I go on it.  With the trial I am on I was given lots of information and encouraged to ask questions and had the opportunity to opt out at any stage.  I am pleased that I am on this trial and if you are given the opportunity to participate in a trial, it is certainly worth thinking about. Helen

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Profile picture

Helen

242 POSTS
JOINED AUG 2016
September 19, 2016 at 6:30 pm

I am on a clinical trial, that is based in Sydney.  This is my second clinical trial.  In the first trial I received the placebo and I was taken off this trial when it was clear that my cancer had returned.  After some surgery I was given the opportunity to go on another trial of the same drug, however I wouldn’t receive the placebo this time.  I have been on this trial for 9 months now.  For the first 5 months I was given Olaparib and a chemo drug called cyclophosphamide.  I am now only being given Olaparib.  For the first 6 weeks I had to have blood test each week, this was to check that my red blood cells were not too low and a scan every 3 weeks.  As we live in Canberra, it was a bit tedious going up each Wednesday for this blood test and doctors appointment.  Sometimes we went the night before to sort of make it a mini holiday.  Then the appointments dropped down to 3 weeks apart, then 6 weeks apart and now they are 3 months apart.   There are so many positive things about a trial, you are being monitored regularly, you are treated so respectively and wonderfully by the trial staff, you are participating in research to help future patients, you are usually seen by the top specialist in the country, you are being offered a treatment that will prolong your life, it gives you hope for the future and if you are a country resident you can get assistance to help cover the costs of getting to Sydney.  One of the disadvantages of a trial, is that once again you are getting a drug that has side effects.  With Olaparib there was a bit of nausea at first, however that has now settled down and the doctor was fully aware of this side effect and gave you anti nausea tablets and the other side effect is a bit of tiredness, which seems to have gone now.  I heard about the trial through my oncologist.  She recommended I go on it.  With the trial I am on I was given lots of information and encouraged to ask questions and had the opportunity to opt out at any stage.  I am pleased that I am on this trial and if you are given the opportunity to participate in a trial, it is certainly worth thinking about. Helen