• Where are Helen’s posts – I want to see her smiling face one more time – I was just advised of her passing.

    I was so grateful someone let me know – she was instrumental in my early cancer life – I loved this lady like I had known her in person all of my life – her words were golden to me.

    God Bless and Keep You Helen – your wings are soaring…[Read more]

  • Karen!

    Grandchildren would be awesome!

    I visited a grammar school mate’s daughter yesterday at Smith College – I love to support and cheer on young people.

    Do you take magnesium oxide?  This is my current question – I would like to take  800 mg in the am and pm.  Or 800 mg in the am and 400 mg in the pm – making it 1200 mg per day.  My lev…[Read more]

  • Karen!

    Grandchildren would be awesome!

    I visited a grammar school mate’s daughter yesterday at Smith College – I love to support and cheer on young people.

    Do you take magnesium oxide?  This is my current question – I would like to take  800 mg in the am and pm.  Or 800 mg in the am and 400 mg in the pm – making it 1200 mg per day.  My lev…[Read more]

  • Hello Group-

    Just saw a post from Karen and Sirin and Helen!  Yay we are all still here.  I am now in Massachusetts receiving treatment with the Dana Farber in Boston.  Yesterday I had my infusion of Avastin, CA125 11, all numbers excellent but magnesium – 1.4 (range 1.8) so I started a magnesium oxide 400 mg supplement today.  21 days pre…[Read more]

  • HealthyNow replied to the topic HELEN in the forum Anything Ovarian Cancer 1 year, 2 months ago

    Hello Helen and Maureen –

    CONGRATULATIONS Maureen on your surgery!  Yay.  A huge hurdle has been passed for this journey.  I am in Taiwan – diagnosed 10/13/2016.  I finished 57 chemos 2 weeks back.  Now I am an Avastin only patient.  My lovely Eric Chen Chi-Hau, MD informed me July 17, 2018 that there had been DRAMATIC REDUCTION in all tumor…[Read more]

  • HealthyNow replied to the topic HELEN in the forum Anything Ovarian Cancer 1 year, 5 months ago

    Good evening Helen,

    In the hospital for 2nd night only to have an MRI on my left leg where a ‘thing’ is bugging the nerve.

    VERY happy to hear your marker is coming down.  Hooray!  6 cycles and a break – sounds excellent to me.

    The MRI was the weirdest thing ever – like a symphony for Clockwork Orange met the Las Vegas Blue Man Group.  Just in…[Read more]

  • Helen,

    I lost our thread.

    I will not have chemo or blood work till June 15, 16.

    Longest I have been without treatment since 10/13/2016.

    No blood stick this Friday either – thrilled about this.

    Going on a church retreat this weekend.

    Very unhappy at work – my contract was not renewed and I suspect these people are the tackiest on the Earth…[Read more]

  • Helen!!!!

    I am celebrating – my CA125 was 23 May 25, 2018.

    Yay!  No chemo this w/e bc some number that impacts the white blood cells is 2.3 and is supposed to be 7.0.

    Will try again Friday, June 1.

    xo

    Sandra

  • Yay Helen Yay Yay Yay!  I am so happy to hear your CA125 is coming down down down.  Wheeeee!  That’s what we want to hear.

    I am at 41.

    Your book sounds interesting.  Just finished Dan Brown DECEPTION POINT and started John Grisham’s GRAY MOUNTAIN about strip mining in the Appalachian Mountains.

    Cried through the entire wedding.  Still watc…[Read more]

  • Helen-

    No!  A shave….sniff.  You have a mighty good attitude.  Four years ago.  Second bald time.  We are warriors.  Your time at the ocean with your daugther in a house sounds straight out of a novel – sweet.  I vote for more of that activity!  ha ha.  Who does like interviews.  I felt then and still do that my job this year was straight…[Read more]

  • Good Evening Helen from the 14th floor window of NTUH,

    #2 of 3 chemo this cycle.  I am SO glad I did not book my holiday.  My life has changed 120 degrees several times since October 2017 when I was about to book.  So Avastin took me from 225 to 50 then I elevated to 61 (cried) and now back down 6 to 55.  Chen threw back in carboplatin with my…[Read more]

  • Sunday, April 22 2018 10:25 am

    Hey Helen!

     

    AFL FOOTY is not on F movies here in Taiwan.  I will check Coke and Popcorn too.  I am having MANY challenges right now from EVERY front!  ha ha.  But the deal is I am still breathing and able to meet each challenge.  Most of it is government BS ….Helen – omg even this site just told me I cann…[Read more]

  • Sunday, April 22 2018 10:25 am

    Hey Helen!

     

    AFL FOOTY is not on F movies here in Taiwan.  I will check Coke and Popcorn too.  I am having MANY challenges right now from EVERY front!  ha ha.  But the deal is I am still breathing and able to meet each challenge.  Most of it is government BS …. I uploaded all 850 ct scans twice and they are in t…[Read more]

  • Hello Anna and Helen – I have ovarian serous surface papillary carcinoma – 12 x 7 cm tumor removed in feburary with total hysterectomy, omentum, 19 lymph nodes.  no cancer in nodes.  doc said something about chemo pills.  we are off chemo for july – ct scan clear.  ca125 rising but according to this not to wor…[Read more]

  • Oh Helen did the ascities draining hurt?  Big big hugs.  How is the taxol?  I think the carboplatin is wicked – the side effects were the YUCKS.  Well your spirits seem bright.  I am a bit miffed right now – my second opinion, July appointment – Olaparib angel with AstraZeneca failed to specify what records they want (it’s Univ of Calif. San Fran…[Read more]

  • Hi Helen-

    April 5 here – 3 day tomb sweeping holiday – I am enjoying hiking in Yangminshan National Park – forest bathing works wonders!  I took you hiking with me and have thought of you daily – hope your CA125 is going down down down and no draining is necessary — that the ascities just drys up – I found ascities draining to be the worst pain…[Read more]

  • Hello Helen from National Taiwan University Hospital-

    Good news CA125 to 50.6!

    The BRCA test is the PALB2 gene mutation https://www.ambrygen.com/sites/default/files/web/understanding_your_results/cancer/palb2_positive_uyr.pdf

    Hope things are great for you – next CT Scan mid April – will learn more about 4cm tumor in/on nerve near renal…[Read more]

  • Hi Helen-

    You have a better grasp of the 14 thing than I!  Will receive the pharmacist’s translation on Wednesday.  Your trip sounds really fun.  Carboplatin started out ok, then got more intense with vomiting, and then vomiting all night!  So now no more.  Is this your first round of carbo?  I have been on and off of this the whole time.  Next c…[Read more]

  • Tuesday evening, 9:24 pm March 13, 2018

    Dear Helen,

    On March 10 I received the results to my BRCA test – taken Dec 3, 2017.  I am NOT Brca positive.  I do have the st14 tumor suppressor protein gene like cousin to BRCA – I will know more tomorrow I suppose when I pick up my medical records.  My oncologist said I am still in the class of pe…[Read more]

  • Helen-

    Have a grand time.  So happy for you.

    In the hospital for tonight – the cocktail is tope, carb, avastin!

    So many women here tonight who had surgery this past week.  WARRIOR girls.

    Thanks always for your words of encouragement.

    xo

    Sandra

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