• karen replied to the topic Hello! I’m Julie. in the forum Say Hi Here! 2 months, 2 weeks ago

    Hello Julie,

    Welcome!  I am sure you are feeling very overwhelmed with everything going on at the moment.  It’s great that you were able to find this forum useful and more importantly, calming.

    My situation was similar to yours, everything happened within a few weeks back in 2014 and I’m happy to say I am still doing okay following surgery and 1…[Read more]

  • karen replied to the topic Hope? in the forum Say Hi Here! 4 months, 4 weeks ago

    Hi Karen,

    My name is also Karen, welcome to the forum.

    I was diagnosed with Clear cell carcinoma (stage 1c) in Sept 2014 and am still here to tell the story. (It must be a “Karen” thing.) I’m sorry that you are having such a hard time.. and having suffered a stroke at the same time as dealing with chemo would have been such a shock!

    I live in…[Read more]

  • Hi cmci1907,

    Firstly, you are not alone!!  There are many, many women on this forum that have had similar feelings to yours, myself included.

    Coming to the end of active treatment can be a daunting time.  You go from a flurry of appointments with various medical professionals, to virtually nothing.  And it can be scary, especially when you fee…[Read more]

  • Hi Elaine,

    Welcome to the forum!

    I was diagnosed back in 2014 and although I did not have stage 3, I am still very much alive!  I run a support group for those touched by ovarian cancer in my town and I can tell you that there are a number of women who have been living with this disease for many, many years.  I met one lady who was 84 years o…[Read more]

  • Hi ecraftybean,

    Welcome to the forum!

    I was diagnosed back in 2014 and although I did not have stage 3, I am still very much alive!  I run a support group for those touched by ovarian cancer in my town and I can tell you that there are a number of women who have been living with this disease for many, many years.  I met one lady who was 84 ye…[Read more]

  • karen replied to the topic Unmoored in the forum Anything Recurrence 1 year ago

    “If it makes you happy, do it.”  I LOVE this Nikki!

    Karen

     

  • Hi Tanya,

    Welcome to the forum!  You will find lots of people here that have similar stories to yours and who also understand you and your feelings.

    Firstly, congratulations on being well and cancer free.  Whilst I am sure you feel relieved, you may also feel moments of anxiousness and fear.  I know I do!

    I was diagnosed in Sept 2014, had su…[Read more]

  • karen replied to the topic Waiting for diagnosis in the forum Say Hi Here! 1 year ago

    Hi Claire,

    Welcome to the forum!

    Firstly, please don’t feel like a fraud for coming here to ask questions and seek advice.  There’s nothing wrong with being forearmed, especially under these circumstances!

    I think that the first question I would ask is, how will the biopsies be done and how long will it take to get the results back?  Until y…[Read more]

  • Hi Liz,

    Hope you are doing okay.

    In response to your question “I was wondering how long after Surgery [ hysterectomy and the debulking] do they normally start chemotherapy again?” as with any treatment it really does depend on your individual circumstances, how well you recover from the surgery and of course the results of the blood tests you…[Read more]

  • Hi Liz,

    Welcome to the forum.  Am very sorry to hear about your diagnosis and can understand your frustration around the way your medical team are treating you.  It can make a very stressful time, infinitely worse!  I speak from experience.

    You will find lots of useful information here on the forum and on the Ovarian Cancer Australia website.  T…[Read more]

  • karen replied to the topic Hi I am Sharon in the forum Say Hi Here! 1 year, 2 months ago

    Hi Marj,

    Welcome to the forum! You will find lots of interesting people to connect with, some who will have had similar experiences to you and others who have had very different experiences. You will notice that I have highlighted the words similar and different and with good reason.  To put it simply, just like no two people are identical in…[Read more]

  • karen replied to the topic Dear Cancer… in the forum Letter to Cancer 1 year, 3 months ago

    Hi Sirin,

    Thank you!  I find it very cathartic to write and I am blessed that poetry comes fairly easily to me, though usually only in the wee hours of the morning!

    I am doing well now.  Even though it is over 2 years since I finished chemo, the lethargy persists.

    I hope that all is well with you!

    Kindest Regards,

    Karen

  • karen replied to the topic Guilt in the forum Anything Ovarian Cancer 1 year, 4 months ago

    Hi Rachel,

    I’m sorry to hear that your mum is having such a terrible time. It can’t be easy watching her go through it all, especially when your own memories of the experience are fresh in your mind and not something that you’d wish on any one.  This disease just sucks!

    Speaking to your GP is probably a good idea.  No harm in getting all of t…[Read more]

  • karen replied to the topic Guilt in the forum Anything Ovarian Cancer 1 year, 4 months ago

    Hi Rachel,

    I get where you are coming from re the guilt!  It’s not easy living when those around you and close to you are not.  🙁

    Given that you, your mum and grandma all had either ovarian or breast CA, it seems that there is enough familial history to warrant your daughter and your sons (if you have any) having gene testing.  (Probably stat…[Read more]

  • Hi Neigh,

    I hope you are doing okay.  I know how hard it is to try and stay positive!!

    Keep in mind that an increased CA125 can be caused by a lot of things, not just ovca.

    I hope you get some answers soon and are able to put this all behind you.

    Karen  xx

  • Hi Meredith,

    Am sorry to hear that you are having such a tough time at the moment.  It can be very frustrating when you feel as though you were progressing well, only to have something knock you back.

    I’d not heard of Intraperitoneal chemo until reading your post, so unfortunately I’m not able to offer any insights, though having read a little a…[Read more]

  • karen replied to the topic Dear Cancer… in the forum Letter to Cancer 1 year, 4 months ago

    Hi Sirin,

    Wow!  This is just wonderful!  Thanks for sharing your letter.  I wrote a poem about my chemo and found it very cathartic……

    Blessed Chemo

    With trepidation and a pounding heart, I step through the lift doors. Not knowing what to expect, how to feel, I stop. I pause.

    I’m met with a smiling face, it masks the ward clerks pity. But I…[Read more]

  • karen replied to the topic Dear Cancer… in the forum Letter to Cancer 1 year, 4 months ago

    Hi Sirin,

    Wow!  This is just wonderful!  Thanks for sharing your letter.  I wrote a poem about my chemo and found it very cathartic……
    <p class=”MsoNormal”>Blessed Chemo</p>
    <p class=”MsoNormal”>With trepidation and a pounding heart, I step through the lift doors. Not knowing what to expect, how to feel, I stop. I pause.</p>
    <p cl…[Read more]

  • karen replied to the topic support group in the forum Staying Well 1 year, 8 months ago

    Hi Kathy,

    Where abouts are you located?  If you are near Ballarat, we have a support/friendship group that might interest you.  Also, I found that the tele support groups offered by OCA are a fantastic resource.

    Look forward to hearing from you!

    Karen

  • karen changed their profile picture 1 year, 10 months ago

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