• Sirin replied to the topic First Chemo Today in the forum Say Hi Here! 7 months, 2 weeks ago

    Hi Angela,

    Welcome to our forum. I just wanted to respond to your question about food. I had three rounds of chemo (Etoposide and Cisplatin). I found that I was totally put off hot food altogether. I wanted only cold food like fresh fruit, veggies, cold drinks and ice chips. During my treatment I didn’t really eat that much, to be honest, I just…[Read more]

  • Sirin replied to the topic Dear Cancer… in the forum Letter to Cancer 9 months, 3 weeks ago

    Hi Churchmouse,

    Thank you for sharing your poem, it rings true for so many of us. The purpose of sharing these letters/poems to cancer was to demonstrate the rollercoaster that a diagnosis is and also to demonstrate the varying and unique experience it has on us as a community. By sharing the impact our hope is to share this with others enough to…[Read more]

  • Sirin replied to the topic Hi I’m Lina in the forum Say Hi Here! 10 months, 1 week ago

    Hi Lina,

    Welcome to the forum and I’m so sorry about the news with your brother’s girlfriend. It is wonderful that you are seeking our research, information and support for her. I had a version of OC that is not BRAC1 related so can’t directly relay any information from my own experience. I am sure that someone on here will respond that may have…[Read more]

  • Hi Sarah,

    It is so wonderful that you have joined the forum, like Rachel I too understand the crippling fear of the wait for a biopsy to occur. My experience was similar to Rachel’s in that my blood tests all came back looking toot to suspicious. There really is no clear way to work out if the mass is malignant without a biopsy.

    I had a 20cm…[Read more]

  • Sirin replied to the topic Hi- I am Joy in the forum Say Hi Here! 11 months, 3 weeks ago

    Hi Faye1959,

    Thank you for joining the forum and voicing how you are feeling. Depression is common in people living with the challenges of cancer and given the challenge you’re in very understandable. Have you been in contact with OVCA helpline 1300 660 334 to discuss the way you are feeling. They are wonderful and can offer you support on this f…[Read more]

  • Hi Maia,

    So sorry to hear about your mum’s recurrence. I personally have a different experience to your mum’s but I am sure one of our lovely members will be able to relate more closely to her experience and support you with your questions. I just wanted to say hello and let you know your message has been seen by someone.

    Please let me know if I…[Read more]

  • Hi Sania,

    Thank you for sharing your experience with us and we are so happy to see you have joined the forums. I was 33 when diagnosed and one thing medical professionals still say to me when they meet me is “wow, but you’re so young!”.

    I had surgery and was given three rounds of chemo as treatment. My experience with chemo (in hindsight) was t…[Read more]

  • Sirin replied to the topic Hello! I’m Julie. in the forum Say Hi Here! 1 year, 4 months ago

    Hi Julie,

    Welcome to the forum. I can completely relate to your story. I too had very similar symptoms. I thought I was pregnant and did a home pregnancy test a couple of times (which were negative) despite knowing I couldn’t be pregnant given my husband had had the snip. I had back pain and put this down to carrying my one year old around not…[Read more]

  • Sirin replied to the topic Hi- I am Joy in the forum Say Hi Here! 1 year, 7 months ago

    Hi Joy,

    Thank you for sharing your amazing silver linings. There were so many in their I feel fortunate enough to relate too.

    Having the ability to not worry and to be in the present is one of the many precious gifts I certainly felt that came from one of the darker moments in my life. My each day is now so much richer because of it.

    Please…[Read more]

  • Sirin replied to the topic Good Afternoon in the forum Say Hi Here! 1 year, 7 months ago

    Hi Sioux,

    Thank you for sharing your story. I’m sure many of the women here can relate to not knowing what to write as there is so much detail in each of our experiences. My experience was similar. I was diagnosed in 2016 and still get asked to share my story from time to time and the level of detail varies each time.

    We look forward to h…[Read more]

  • Sirin replied to the topic Hi. Newly diagnosed. in the forum Say Hi Here! 1 year, 8 months ago

    Hi Zeb004,

    I know that shock you speak of very well. I too felt the same when I was diagnosed. Welcome to a wonderful community of amazing courageous women whom helped me through my journey. They taught me to ride this journey one day at a time and that I was not alone. I hope you have the same experience xx

    Sirin

  • Sirin replied to the topic Hello I’m Leonie in the forum Say Hi Here! 1 year, 9 months ago

    Hi Leoni,

    Welcome to the forum, my experience and diagnosis was a little different to yours however, I had chemo and surgery and have two small children so can relate to you on those aspects of your treatment and some of the emotions we experience during them.

    Although it feels difficult to maintain your strength at times it’s important to r…[Read more]

  • Hi Brianna,

    I just read your message and it resonated so much with me. I was diagnosed with a germ cell tumor at 33. It can be really difficult, as you mentioned, to be faced with a challenge like this so young because as I am sure you now know you suddenly feel like life has changed trajectory. One of my first posts here was from my hospital bed…[Read more]

  • Hi Anne,

    Welcome, it’s so great to have you hear amongst us. You’re feelings we can relate to. Uncertainty can be really tough and I too joined this group when I felt unsure. It helped a great deal. I had three rounds of chemo myself and I have to say it was a challenge but the anticipation was worse than the reality. We are so blessed to rec…[Read more]

  • Hi Emmak,

    Welcome, I was 33 when diagnosed with an Ovarian Germ Cell tumor and have been in remission just over a year and can relate to Nikki’s comment about the shock people have when they here you are a survivor. Congratulations on 6 years and the SCUBA sounds so great. Great to hear you’re doing so well. As survivors, if we can spread…[Read more]

  • Sirin replied to the topic Dear Cancer… in the forum Letter to Cancer 2 years, 4 months ago

    It is nice to hear from you again Helen,

    I sure hope the chemo is not too challenging for you. I don’t believe any of our journey’s or experiences are in vain. Yours has had a positive impact on your family by way of possibly preventing some members of them go down this road. I hope I have had the same impact on people I have shared my story…[Read more]

  • Sirin replied to the topic Dear Cancer… in the forum Letter to Cancer 2 years, 4 months ago

    Hi Karen and Helen,

    Karen, thank you so much for sharing your poem. Reading it made me feel like I was back in day oncology. It was such an accurate reflection of what it’s like. I hope you are feeling well now.

    Helen, thank you for your kind words. I hope we get more of our fellow fighters/survivors to share their letters/poems/words so that we…[Read more]

  • Sirin replied to the topic Sirin in the forum Say Hi Here! 2 years, 4 months ago

    Hi Rachel,

    Thanks for responding to my post. I wrote that post two months ago and I have to say I am feeling a lot stronger since then. I put on a lot of weight during my treatment and the fatigue is still very real for me. I find the morning difficult. But I push through the fatigue and once I get going I feel much better.

    How long ago was your…[Read more]

  • Sirin replied to the topic Hiya, I’m Sirin in the forum Say Hi Here! 2 years, 4 months ago

    Hi Rachel and Megan,

    Thank you, both for your messages, sorry I haven’t responded sooner. I had no idea I had received them till this evening. I hope you are both doing well.

    Rachel, My diagnosis was roughly a year ago and found out when I thought I might be pregnant because I thought I felt a baby’s first kick. My GP knew straight away it…[Read more]

  • The moment of my diagnosis saw my future totally black out in my mind. I was in this state for a number of mins until I consciously made a decision that I would fight with all I have to win this fight and that I would do so by remaining positive, hopeful and strong. The next four months were challenging but I made a conscious effort to always look…[Read more]

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